Episodes
Thursday Sep 26, 2024
Innovators in Action: Speech and Surgery Collaboration in Ethiopia and Tanzania
Thursday Sep 26, 2024
Thursday Sep 26, 2024
Comprehensive Cleft Care professionals in Africa are innovators. Traditional volunteer outreach/mission models are being replaced – new systems are required.
With skilled local surgeons in place, addressing the need for speech therapy in their cleft patients is an important challenge. A new generation of cleft teams embrace it!
In part one of this two-part series, host Hugh Brewster sits down with four inspiring young professionals from Ethiopia and Tanzania—two surgeons: Dr. Getaw Alamne & Dr. Francis Tegete and two speech therapists: Wedise Mekonnen & Adam Mang’ombe—who are transforming the landscape of cleft care in East Africa.
What led them to specialize in cleft? What motivates their commitment to pursue team-based care?
In part two, dive into the key challenges that CCC teams face in building new models of care and the role that collaboration plays in overcoming obstacles.
Thursday Feb 01, 2024
Building Momentum for Cleft Psychosocial Care: Bolivia and the UK
Thursday Feb 01, 2024
Thursday Feb 01, 2024
Will my child be supported and accepted in our family? At school? In the community?
Beyond the immediate medical concerns of feeding and securing a safe and effective surgery, parents with a cleft-affected child worry about the long-term social, emotional and psychological implications of the condition. While progress has been made in some High-Income Countries (HICs), cleft psychosocial support isn’t often accessible in Low and Middle-Income Countries (LMICs).
This podcast explores the role of psychosocial support within a Comprehensive Cleft Care approach. We speak with Dr. Nicola Stock, who highlights learning from the UK experience, and draw from Julieta Villca Guzman’s insights about integrating cleft psychosocial support in Cochabamba, Bolivia.
Friday May 12, 2023
The Madagascar Mission: A New Model of Care
Friday May 12, 2023
Friday May 12, 2023
Historically, cleft in Madagascar was treated by foreign volunteers via a fly-in-fly-out surgical model. An infant with a cold during the “mission” dates may be excluded from surgery for a year or more! Clinique Santé Plus, in partnership with Transforming Faces and USA-based NGO Smile Train, has built the first CCC centre in Antsirabe, Madagascar and is working to inspire change nationally.
In this podcast, we discuss the first Comprehensive Cleft Care centre in Madagascar, the challenges the CCC team has faced in changing perceptions of local, ongoing care, and the hopes and dreams for cleft care in Madagascar.
Wednesday Dec 01, 2021
Comprehensive Cleft Care Solutions in a Time of Crisis
Wednesday Dec 01, 2021
Wednesday Dec 01, 2021
COVID-19 has unleashed extraordinary disruption to the delivery of cleft care worldwide. In today’s episode, we explore how a diverse group of global cleft professionals is rallying toward seeing children and families receive the best care possible -- even amidst the ongoing pandemic.
Matt Fell (Cleft Charity, UK), Karen Goldshmied (Smile Train, Chile), Jayanth BS (ABMSS, India) and Neeti Daftari (Circle of Cleft Professionals, Canada) offer a window into a novel experiment in sharing learning and seeking cleft care solutions during a global crisis.
Monday Apr 12, 2021
From Isolation to Comprehensive Care: Caring for Cleft in Bulgaria
Monday Apr 12, 2021
Monday Apr 12, 2021
Parent powered advocacy propels cleft care forward. In this episode we listen-in to the insights of three dedicated cleft professionals: Professor Youri Anastassov, Jana Angelova and Gareth Davies.
Together, they are supporting a vision where families, cleft professionals, and NGOs work together to effect change. Their inspiring stories point to the transformation of a generation of cleft patients in Bulgaria.
Wednesday Nov 18, 2020
Towards Face Equality
Wednesday Nov 18, 2020
Wednesday Nov 18, 2020
A shared experience for everyone with a cleft lip is standing out from their peers. Even after successful surgeries, a facial difference can remain.
In this episode, we welcome James Partridge (OBE) from the UK, Indian surgeon Dr. Manu Prasad, and Julieta Perondi from Argentina to discuss the difficulties of living with a facial anomaly, as well as strategies that support families in seeing their children thrive.
We note with sadness James Partridge's passing prior to the publication of this podcast.
Wednesday Jul 15, 2020
Completing the Circle
Wednesday Jul 15, 2020
Wednesday Jul 15, 2020
Having a cleft can have a lasting impact. For our guests - Nang Ei Ei Phyu (Gift), Angelica Campos and Dr. Camila Caro - their unique cleft journeys drew them in to pursing careers in the cleft profession. Join Executive Director, Hugh Brewster, as we explore how the impact of cleft lip and palate at a young age has shaped the future of these inspiring comprehensive cleft care professionals.
Thursday Oct 31, 2019
Cleft Surgery in East Africa - Progress to Celebrate!
Thursday Oct 31, 2019
Thursday Oct 31, 2019
20 years ago, treatment options for children born with cleft in a typical East African village were very limited. But over the past two decades, local health professionals have been growing new approaches to address the needs of children born with cleft lip and palate in Africa, and beyond. Today’s episode of Caring for Cleft focuses on an area of burgeoning hope and progress: the inspiring efforts of a growing number of surgeons based in East Africa who have become strong advocates for comprehensive cleft care for all. We speak to Dr. Mekonen Eshete in Ethiopia and Dr. George Galiwango in Uganda to learn more.
Tuesday Jul 16, 2019
How a 3D Cleft Palate Simulator is Transforming Cleft Surgery
Tuesday Jul 16, 2019
Tuesday Jul 16, 2019
Learn how a new training tool called the 3D Cleft Palate Simulator is transforming surgical results and improving the way surgeons are performing cleft palate repairs. In this episode, we speak with the creator of the simulator, Dr. Dale Podolsky, as well as Dr. Christopher Forrest, Division Head of Plastic & Reconstructive Surgery at SickKids Hospital. We also hear from Dr. Carlos Giugliano and Dr. Veronica Caller Farfan on how the simulator has been used to train surgeons in Latin America.
Monday Jun 17, 2019
Launching the Speech Profession in Ethiopia
Monday Jun 17, 2019
Monday Jun 17, 2019
Children born with cleft often require speech therapy to learn to communicate clearly. In 2019, the first cohort of speech therapists will be graduating from a brand new undergraduate speech program in Ethiopia! Today, we hear from Dr. Mekonen Eshete and Berhane Abera at Yekatit 12 Hospital, Marci Rose from TAAAC, and two of the students themselves about this new program. Learn more at: transformingfaces.org